With a big heart and wide smile, Carlee Ryan Beam, born to parents Jason and Kelli on February 21, 2008, has been an amazing blessing from God to all those that have met her.
At the age of only two years old, Carlee was diagnosed with a rare neuromuscular disorder called Spinal Muscular Atrophy (SMA) Type II/III, a condition where her voluntary muscles keep her from walking and doing very typical tasks that we all might take for granted.
Although the news was devastating, our family decided to take the opportunity to share first our faith and the story of HOPE, then to spread the word about SMA to find a CURE for this disorder. Carlee loves to sing, talk, laugh, color, and ride in her bright pink Cadillac. She loves to watch her dad and older brother Drew play baseball and football, she enjoys spending time with her family and she especially loves shopping with her Mimi and Grammy.
Help us raise money and drive awareness to develop a treatment and find a cure for Spinal Muscular Atrophy!
We have currently raised $40,000
Our goal this year is $40,000
Proceeds go to Families of SMA -- a non-profit organization with a focus on funding SMA research to develop a treatment and cure for the disease. The successful results and progress that the organization has delivered, from basic research to drug discovery to clinical trials, provide real hope for families and patients impacted by the disease. The charity has invested over $55 million in research and has been involved in funding almost two thirds of all the ongoing novel drug programs for SMA.