With a big heart and wide smile, Carlee Ryan Beam, born to parents Jason and Kelli on February 21, 2008, has been an amazing blessing from God to all those that have met her.
At the age of only two years old, Carlee was diagnosed with a rare neuromuscular disorder called Spinal Muscular Atrophy (SMA) Type II/III, a condition where her voluntary muscles keep her from walking and doing very typical tasks that we all might take for granted.
Although the news was devastating, our family decided to take the opportunity to share first our faith and the story of HOPE, then to spread the word about SMA to find a CURE for this disorder. Carlee loves to sing, talk, laugh, color, and ride in her bright pink Cadillac. She loves to watch her dad and older brother Drew play baseball and football, she enjoys spending time with her family and she especially loves shopping with her Mimi and Grammy.